Huntington's Disease Association

The Huntington's Disease Association (HDA) is a prominent UK-based charity and patient advocacy organization dedicated to supporting individuals and families affected by Huntington's disease. Established in 1971, the association provides a comprehensive range of services, including specialist advisory support, educational programs for healthcare professionals, and advocacy for improved clinical care. While the HDA does not develop therapeutics directly, it is a vital stakeholder in the life sciences ecosystem, funding pilot research projects and facilitating patient recruitment for global clinical trials. The organization operates a network of specialist advisers across England and Wales to ensure coordinated care and support for the Huntington's community. By bridging the gap between patients and the research community, the HDA helps accelerate the development of potential treatments and remains the primary point of contact for Huntington's disease support within the United Kingdom.