Life's a Polyp Foundation

Life's a Polyp Foundation is a non-profit organization dedicated to providing support, education, and awareness for individuals affected by Familial Adenomatous Polyposis (FAP) and related rare conditions. Founded by Amber Backenstoes, the foundation focuses on improving the quality of life for patients through advocacy, resources for navigating complex medical needs, and community engagement. The organization specifically addresses challenges associated with FAP, Gardner Syndrome, and Short Bowel Syndrome, including the management of desmoid tumors and permanent ostomies. By fostering a supportive community, the foundation aims to empower patients and their families while raising public awareness of these rare genetic disorders.