Taylor's Tale

Taylor’s Tale is a non-profit advocacy organization dedicated to advancing treatments for Batten disease and other rare genetic disorders. Founded in 2007, the organization focuses on funding translational research, influencing public policy, and raising global awareness for the rare disease community. Taylor’s Tale is best known for its critical role in supporting the development of the first gene therapy for CLN3 Batten disease, which successfully transitioned from academic research to clinical trials. Beyond research funding, the group has successfully advocated for legislative changes, including the creation of Rare Disease Advisory Councils. By bridging the gap between patients, scientists, and regulators, Taylor’s Tale works to accelerate the delivery of life-saving therapies.