ACTion Partners

ACTion Partners is a private healthcare consulting firm focused on the rare disease sector. The firm provides strategic leadership, patient advocacy, nonprofit management, programming support, clinical trial and research engagement, and health policy advisory services for organizations operating in rare disease. Its positioning is service-based rather than drug-development-based, with an emphasis on helping clients incorporate patient-centered perspectives and improve impact across research, care, and advocacy. The business appears closely linked to the broader RareRising ecosystem and leverages leadership experience from major rare disease nonprofit organizations.