ALD Connect

ALD Connect is a U.S.-based rare-disease non-profit organization focused on improving health outcomes for people affected by adrenoleukodystrophy (ALD). Rather than operating as a drug developer, it serves as a patient advocacy, education, and research-enablement organization that connects patients, families, clinicians, scientists, and industry participants. Its activities include supporting clinical research participation, maintaining community and research programs, convening annual meetings, and advancing collaborative research priorities through its network and Breakthrough Research Fund. The organization is centered on ALD and related manifestations such as adrenomyeloneuropathy, with the goal of accelerating translation of scientific advances into better clinical care.