AlphaNet

AlphaNet is a specialized non-profit healthcare service organization dedicated to providing comprehensive disease management and support for individuals with Alpha-1 Antitrypsin Deficiency (Alpha-1). Founded by patients for patients, the organization offers personalized health management programs, educational resources, and clinical trial coordination. AlphaNet is unique in its "peers-helping-peers" model, where coordinators are themselves Alpha-1 patients, facilitating high engagement and adherence to augmentation therapy. The organization also maintains a significant research registry to advance the understanding and treatment of the condition. Through partnerships with pharmaceutical companies and the Alpha-1 Foundation, AlphaNet serves thousands of patients across the United States and its territories. Its services are designed to improve clinical outcomes and quality of life for those requiring lifelong augmentation therapy.