American Thrombosis and Hemostasis Network

The American Thrombosis and Hemostasis Network (ATHN) is a non-profit organization that provides the essential data infrastructure for the bleeding and clotting disorders community in the United States. By partnering with over 140 federally funded Hemophilia Treatment Centers (HTCs), ATHN maintains a secure national database known as the ATHN Dataset, which aggregates clinical data to support research and quality improvement. The organization facilitates large-scale clinical trials and public health surveillance in collaboration with the CDC and HRSA. Their platform enables researchers to analyze treatment outcomes and safety data for rare hematologic conditions. ATHN's work is critical for advancing the standard of care and supporting the development of new therapeutic strategies, including gene therapies, for patients with lifelong blood disorders.