Autoimmune Registry

Autoimmune Registry is a U.S.-based nonprofit health data organization that operates a cross-disease registry for people living with autoimmune conditions. The organization collects patient-reported and longitudinal data across more than 100 autoimmune diseases to support epidemiology, prevalence estimation, comorbidity analysis, patient education, and research recruitment. Its platform is designed to function as an autoimmune data commons, helping researchers, advocacy groups, and patients better understand disease burden, diagnostic delays, and shared patterns across autoimmune disorders. Autoimmune Registry also maintains a curated disease list, publishes prevalence research, and supports external clinical studies through patient engagement and network partnerships. It is not a drug developer, but a registry and research-enablement organization serving the broader autoimmune disease ecosystem.