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Bridge the Gap - SYNGAP Education

Cypress, Texas, USA
Ownership
Private
Development stage
Other
01

Overview

Bridge the Gap - SYNGAP Education is a non-profit patient advocacy and research foundation dedicated to SYNGAP1-related intellectual disability. The organization focuses on accelerating the development of treatments by funding international research, maintaining a global patient registry, and raising public awareness. They collaborate closely with academic institutions and biotechnology companies to advance therapeutic modalities such as gene therapy and antisense oligonucleotides. Additionally, the foundation provides critical educational resources and support networks for families and healthcare providers navigating the complexities of this rare genetic disorder. By facilitating natural history studies and identifying clinical endpoints, the foundation plays a pivotal role in preparing the SYNGAP1 community for upcoming clinical trials.

Therapeutic areas
PsychiatryNeurology
Modalities
Gene therapyAntisense oligonucleotideSmall molecule
Industry
Academic Hospital/University/Research
02

Partnerships

Rare-XGlobal GenesNational Organization for Rare Disorders (NORD)Stoke TherapeuticsPraxis Precision Medicines

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