Cure LBSL Foundation

The Cure LBSL Foundation is a non-profit organization dedicated to finding a cure for Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation (LBSL), a rare genetic white matter disease. The foundation funds and coordinates research efforts, specifically focusing on gene therapy and drug repurposing strategies to address the underlying DARS2 gene mutations. By partnering with academic institutions and biotechnology companies, the foundation aims to accelerate the development of disease-modifying treatments. Their primary mission is to support affected families while driving scientific breakthroughs toward clinical trials.