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HCU Network America

South Elgin, Illinois, United States

Ownership: Private
Development stage: Other

Overview

HCU Network America is a non-profit patient advocacy organization dedicated to helping patients and families affected by homocystinuria (HCU) and related metabolic disorders. The organization focuses on providing educational resources, fostering community support, and driving research toward better treatments and a potential cure. By collaborating with clinicians, researchers, and industry partners, HCU Network America plays a critical role in advancing the clinical landscape for rare metabolic diseases. They also manage a patient registry to facilitate natural history studies and clinical trial recruitment.

Therapeutic areas: Rare DiseasesMetabolic Disorders
Industry: Contract Research Organization

Partnerships

HCU Network AustraliaNational Organization for Rare Disorders (NORD)Global Genes

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