Hemophilia and von Willebrand Education Network

The Hemophilia and von Willebrand Education Network (HAVEN) is a non-profit healthcare organization dedicated to providing comprehensive education, social support, and financial guidance to the bleeding disorders community. Based in Erie, Pennsylvania, the organization focuses on improving the lives of individuals and families affected by Hemophilia A, Hemophilia B, and von Willebrand Disease. HAVEN is widely recognized for its role in establishing Camp Hot-to-Clot, a specialized summer camp that provides a safe and educational environment for children with bleeding disorders. The network facilitates collaboration between healthcare providers, patients, and industry partners to ensure access to the latest clinical information and support services. Through its various programs, HAVEN works to bridge the gap between medical expertise and the daily needs of the patient community.