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Loulou Foundation
London, England, United Kingdomlouloufoundation.org ↗
- Ownership
- Private
- Development stage
- Other
01
Overview
The Loulou Foundation has enabled significant progress in the understanding and treatment of CDKL5 Deficiency Disorder by supporting preclinical and clinical studies, including the CANDID observational study. It has fostered industry-academic collaborations that have led to investigational therapies reaching clinical trials, such as ganaxolone by Marinus Pharmaceuticals receiving FDA Rare Pediatric Disease Designation for CDD. The foundation’s efforts have contributed to the recognition of CDD as a reversible condition at the biological level, increasing hope for restorative treatments.
- Therapeutic areas
- Neurology
- Modalities
- Small moleculesGene therapies
- Industry
- Academic Hospital/University/Research
02
Partnerships
Amicus TherapeuticsBiogen Inc.Elaaj BioMarinus Pharmaceuticals Inc.PTC TherapeuticsUltragenyx Pharmaceutical Inc.Zogenix, Inc.
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