Luke Heller TECPR2 Foundation

The Luke Heller TECPR2 Foundation is a non-profit organization dedicated to accelerating the development of treatments and a cure for TECPR2-related neurodegenerative disease, also known as Hereditary Sensory and Autonomic Neuropathy type VIII (HSAN8). Founded by the Heller family following their son's diagnosis, the foundation funds high-impact research focused on understanding the biological function of the TECPR2 protein and its role in autophagy. The organization actively supports the development of therapeutic modalities, including gene replacement therapy and small molecule screening, through collaborations with leading academic researchers. By bridging the gap between patient families and the scientific community, the foundation aims to move promising pre-clinical programs toward human clinical trials.