Marfan Foundation

The Marfan Foundation is a premier non-profit health organization dedicated to saving lives and improving the quality of life for individuals with Marfan syndrome and related genetic aortic and vascular conditions. Founded in 1981, the foundation provides a robust support network, educational resources, and advocacy for patients and their families while aggressively funding international research. It has been instrumental in major medical breakthroughs, including the identification of the FBN1 gene and the implementation of clinical trials for angiotensin receptor blockers and beta-blockers. The organization also operates specialized divisions, such as the VEDS Movement and the Loeys-Dietz Syndrome Foundation, to address the needs of the broader connective tissue disorder community.