Mukoviszidose Institut

Mukoviszidose Institut is the research and development subsidiary of the German Cystic Fibrosis Association (Mukoviszidose e.V.), serving as a central hub for cystic fibrosis research in Germany. The institute manages the German Cystic Fibrosis Registry, a comprehensive database that tracks patient outcomes to improve clinical care and facilitate longitudinal studies. It provides essential infrastructure for clinical trials, acting as a specialized contract research organization (CRO) that connects pharmaceutical companies with clinical centers. Additionally, the institute is responsible for quality management and the certification of cystic fibrosis care centers to ensure standardized, high-quality treatment across the country.