Rare Patient Voice

Rare Patient Voice is a healthcare research services company that connects patients and family caregivers with surveys, interviews, focus groups, online communities, and clinical-trial-related research opportunities. The company specializes in recruiting and engaging people living with rare, chronic, complex, and non-rare conditions so that pharmaceutical, biotech, market research, and healthcare organizations can incorporate patient and caregiver perspectives into product, service, and research decisions. Founded in 2013 by Wes Michael, the business built a large patient and caregiver community and expanded internationally across multiple English- and European-language markets. In February 2026, Rare Patient Voice was acquired by Konovo and now operates as "Rare Patient Voice - A Konovo Company." It is not a drug developer, but rather a commercial-stage provider of patient insight, panel recruitment, and related research support services.