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Rarus Health
Santiago, Santiago Metropolitan Region, Chilerarus.health ↗
- Ownership
- Private
- Development stage
- Commercial
01
Overview
Rarus Health operates an active digital ecosystem supporting families affected by rare genetic diseases through personalized virtual care navigation, interdisciplinary medical teams, and robust real-world data collection. Their flagship initiative "Proyecto REALES" builds the first Latin American registry of neuromuscular disease patients to inform public policy, accelerate clinical trial recruitment, improve market access planning for therapies targeting rare conditions across LATAM. The company partners with pharmaceutical companies to provide anonymized patient insights that drive more equitable access to innovative treatments.
- Therapeutic areas
- Rare DiseasesNeurology
- Modalities
- Digital health platformReal-world data collection and analyticsPatient support programs (digital care navigation)
- Industry
- Biomedical IT and Biomedical Data Platforms
02
Partnerships
Collaborates with CROs/pharmaceutical/biotech companies seeking real world evidence in LATAM markets.Supported by Chile's National Agency for Research and Development (ANID).
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