RUDI Committee

Rare Diseases Ireland (RDI), formerly known as Rare Unique Diseases Ireland (RUDI), is the national alliance for patient organizations representing people living with rare diseases in Ireland. The organization acts as a central representative body to advocate for the implementation of the National Rare Disease Plan and to improve access to diagnosis, treatment, and care. RDI works closely with government agencies, healthcare providers, and international partners like EURORDIS to ensure that the voices of the rare disease community are heard in policy-making. Their services include patient support, public awareness campaigns, and facilitating research collaborations within the Irish healthcare ecosystem.