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The Healing Goodwill Foundation

Budapest, Hungary
Ownership
Private
Employees
~1
Development stage
Other
01

Overview

The Healing Goodwill Foundation, also known as Duchenne Hungary, is a non-profit patient advocacy organization based in Budapest, Hungary, dedicated to supporting individuals and families affected by Duchenne and Becker muscular dystrophy. Established in 2002, the foundation provides essential services such as physiotherapy, rehabilitation, psychological counseling, and financial assistance for medical equipment. It fosters a strong community through seasonal workshops, summer camps, and educational events that connect patients with healthcare professionals and researchers. The organization is a member of the World Duchenne Organization and has received international recognition, including multiple STRIVE Awards from PTC Therapeutics, for its commitment to improving the quality of life and advocacy for the Duchenne community in Hungary. The foundation also maintains a patient registry and works closely with clinical experts to promote multidisciplinary care standards.

Therapeutic areas
Rare Diseases
Industry
Non-Academic Healthcare
02

Partnerships

PTC TherapeuticsSarepta TherapeuticsWorld Duchenne OrganizationSemmelweis University

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